We use cookies

We use cookies to give you the best possible experience on our website. By continuing to browse this site, you give consent for cookies to be used. For more details, please read our Cookie Policy.

Skip to content

18th March, 2021 |

5 minutes

"I’ve learnt how to pace my life to minimise the pain that everyday tasks can cause."

Indra Mudie

Indra is one of our customer board members and has been a customer of Home Group since 2012.

I was diagnosed with Fibromyalgia and Hypermobility Syndrome (Ehler Danlos) two years ago. I had been experiencing pain and discomfort in my muscles and joints for no reason and was so tired that I could barely function most days.

I was sent home from the doctors many times before I saw a doctor who listened to me, referred me to a neurologist and diagnosed me with Fibromyalgia; at last I had a name for why I was feeling like this.

For the first six months of the diagnosis, I just got on with it. Then it got progressively worse. At the time, I had a full-time job as a dental nurse and volunteered at weekends as a medic at a local karting circuit. I was a positive person, proud of what I had achieved and where I was going with my life.

However, when getting out of bed can wipe you out for the rest of the day, it doesn’t take long to lose your positive attitude. There is no cure for it and no real treatment to ease the condition. I had to give all that up as I was unable to function most days.

 

I also have to deal with comments such as “you don’t look ill” or “you can’t be disabled, you look fine”. Some days I do, other days I walk with the aid of a stick and stop regularly to catch my breath. Luckily, I’ve had wonderful support from my partner and his family. He helped to show me that everything is still possible.

I just have to do things differently. I’ve learnt how to pace my life to minimise the pain that everyday tasks can cause.

I still volunteer as the medic when my health allows and now I’m a community first responder and a heart start instructor. I may not be as busy as I once was, but I’m still proud of what I am achieving with my life.

Help us improve our website. Did you find this web page useful?

Thank you for your anonymous feedback about our website. If you need help with a non-website issue please use our get in touch option.

Please add your comments below: